Gratitude, Patient Support Voice, Trauma Voice

TBI Awareness Day: A story of exposure and learning from a first time supporter.

To be honest, I never thought I would be in this position. Never thought I would be a part of the TBI community but I am incredibly grateful that I am. A couple of years ago, I honestly didn’t know much about TBI. Nothing more than surface knowledge that you may hear on the news or read in the paper about some prominent figure getting into an accident and having a traumatic brain injury.

When I met Jing, it was my first real experience and personal connection to TBI. She told me up front, but I still did not truly understand what it meant to have suffered a brain injury. I didn’t know what came along with it, and what it did to the person who experienced it.

I remember it was a slow process, Jing was very protective of the TBI community and I understand why now. It is a very misunderstood community, one that is the epitome of unseen illness. Learning to be a supporter was not always easy, or graceful (I was not the best at it initially). I still have room to grow in this role, I still have plenty to learn. I look at this as an opportunity to maintain a growth mindset though, as there is always room for improvement.

I can remember the first support group meeting which I attended. I remember the warnings I got from the protective momma-bear that is is Jing about how I had better watch what I say and understand that this was a huge trust exercise for her and the other members of the group. I was a bit worried because I did not know what to expect. I am so thankful that I had had the opportunity to meet the members of this support group. I learned how many of the member’s accidents changed their paths and remain a source of pain and sorrow, but also how individuals work through what life has given them.

These group members suffer from things like depression, anxiety, PTSD, sleeping problems, aches and pains, memory problems. They have lost full use of many of their senses and have a hard time forming and maintaining relationships in their personal lives. Every person of this group has their own story, but they also share a lot of the same truths.

I was nervous a bit in that first meeting. I was worried I would make someone feel uncomfortable or I would not be welcomed. I was very wrong on this point. Being in the meeting I felt like I was part of a family. A family that was open and unfiltered, needless to say, I felt more than welcome.

What I noticed most was the way that each member was supportive of everyone else in the group. They were there to give support but also realistic advice, they were there to give as much as they were there to gain. They were able to use their own truths and circumstances to try to help other members. All the while throwing jokes around the room. It was nice to see that a sense of humor was able to persevere!

What I was able to take away from that meeting was the strong sense of community that I experienced in that room. Every individual with their own circumstances, collectively working to build a place that others and themselves could feel comfortable and supported. This is what we at The MindReset hope to recreate on a larger scale and involving more than just the TBI community.


“Unity is strength… when there is teamwork and collaboration, wonderful things can be achieved.” 

-Mattie J.T. Stepanek


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Please do not hesitate to reach out to the MindReset community.

The MindReset is a community of individuals who seek to inspire a social movement geared toward creating a more Supportive, Inclusive, Compassionate, and Kind society where anyone and everyone has the opportunity to thrive.

  • Facebook: https://www.facebook.com/theMindReset/
  • Instagram: @The_MindReset
  • Twitter: themindreset
  • #TheMindReset #TMR #SICK
  • e-mail: themindreset@gmail.com

 

 

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Emotions, Patient Support Voice, Paying It Forward, Trauma Voice

March For Our Lives

If you are in the D.C. or Madison areas, come join The MindReset as they walk to show support for safer communities!

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The Madison team will be meeting at the Library mall – 2 East Main St. – @ 9:45 AM in front of Memorial library.  Please email us at join.themindreset@gmail.com if you would like more information!

Emotions, Feel Good, Gratitude, Patient Support Voice

Layers of Support

It is interesting as I think about times in my life that I have struggled. Times that have been overwhelmed to the point that I felt as if I had no way out. It is also interesting to look at the different pieces that led me to feel that way, but also all of the contributions from others that allowed me to break free of my struggle and move on.

I have learned that most problems, mine included, are not simple ones. There is more to them than meets the eye. To each problem, there are layers to it. Each layer contributes something different and impacts you in a different way. The same can be said about the support you receive from others around you.

When I look at supports, first I think about the supports that are closest to you. According to ecological systems theory, this is your individual microsystem.  These are supports from your significant other, your peers, your family, along with other environments that have a lot of impact in your life like church, school, or work. Support from these individuals is in a way a comfort blanket, those the closest to you are typically your most supportive figures when you are going through something or life changes in unexpected ways. These are typically the people you can count on the most.

Your personal microsystem is incredibly important to help for some individual needs, but what in my mind is more important for all of us is for the larger systems that surround us to be just as supportive as our microsystem.

This is the true mission of TheMindReset- Rethinking the way we live to create more supportive, inclusive, compassionate, and kind communities. 

As we expand away from our microsystems, larger group dynamics come into play. Looking specifically at our Exosystem- which is characterized by links between social settings that you as an individual do not have an active role in, and our Macrosystem- which is the culture that we live in, this is where work needs to be done.

Like I mentioned earlier, this is part of the mission of TheMindReset- to change the narrative for those that struggle to one where everyone has the opportunity to thrive.

Noone should be forgotten or left behind. With that I will leave you with one of my favorite quotes:

“We cannot seek achievement for ourselves and forget about progress and prosperity for our community… Our ambitions must be broad enough to include the aspirations and needs of others, for their sakes and for our own.”  -Cesar Chavez

 


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Please do not hesitate to reach out to the MindReset community.

The MindReset is a community of individuals who seek to inspire a social movement geared toward creating a more Supportive, Inclusive, Compassionate, and Kind society where anyone and everyone has the opportunity to thrive.

  • Facebook: https://www.facebook.com/theMindReset/
  • Instagram: @The_MindReset
  • Twitter: themindreset
  • #TheMindReset #TMR #SICK
  • e-mail: themindreset@gmail.com

 

Patient Support Voice

Unseen difficulties of mental illness

It’d been a long week for me with school and work so I had planned to go out with a couple of buddies last night, get some dinner, go play some darts. At dinner one of my friends started talking to me about some struggles he had been having recently with anxiety. He had made a mistake at work a couple months ago and since then he has felt a lack of control of his career, worrying about job security.

It was difficult to hear parts of what has been going on for him, he’s been having physical symptoms along with trouble sleeping and just kind of felt stuck and not himself, and that he was unable to be himself because of his anxiety. I don’t think a lot of people realize just how difficult normal functioning is when you have an ongoing battle with mental health issues. Another aspect of mental health that I don’t think a lot of people consider is the comorbidity that goes along with it. More often than not someone will be battling more than one mental health issue, making it all the more difficult to overcome.

The reason that I bring this up, internalizing behaviors like anxiety, depression, somatic symptoms- are not obvious and can go unnoticed and unchecked for so long and at times to the extreme detriment of those who are suffering.

It is our responsibility as friends, family, and loved ones to be aware and vigilant when we notice changes in those around us, especially if we know there is a history of mental illness for the individual or in the individuals family. I take on the responsibility of being a supporter willingly and I will admit it is not easy to help sometimes. I have run into a couple of brick walls in my life when I have tried to help others, but I still will not give up, and I strive to be more helpful in the future.

I have been told that I can be somewhat parental, and not as patient-centered as I should be which is an important lesson to learn as collaboration is more effective for long-term care and not “band-aiding”. There are times when those who are suffering don’t know how to help themselves and they may need extra help and support and even some coaching, but then there are times when individuals understand their illnesses far more than someone who is not suffering and those are the ones that you need to listen to when you consider “how can I help?”

This is so important because if you think about it, having a mental illness doesn’t mean you are a child or are incapable of making your own choices, it just means that it can be a lot harder to do so and to handle certain situations.

Even if you do not personally know someone who is suffering from mental illness, you can still be a voice for those who do. Remember, not everyone who is suffering is obvious, and a lot of times it isn’t until it is too late. Sharing information on ways to get help and support is one way, but also just showing that mental health is important to you. Social media spreads far and wide and if we all can spread the message of support, those who suffer won’t feel so alone.


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Please do not hesitate to reach out to the MindReset community.

The MindReset is a community of individuals who seek to inspire a social movement geared toward creating a more Supportive, Inclusive, Compassionate, and Kind society where anyone and everyone has the opportunity to thrive.

  • Facebook: https://www.facebook.com/theMindReset/
  • Instagram: @The_MindReset
  • Twitter: themindreset
  • #TheMindReset #TMR #SICK
  • e-mail: themindreset@gmail.com
Patient Support Voice

Sometimes, those who take care of others are the ones who need help.

Hey everyone, today I want to touch on some of my own struggles being in the supporter role. It has been very important for me to establish my own layers of support to make sure that I am being mindful of my own needs.

I have found it difficult at times to always be as encouraging as I probably should be, and something I have noticed about these times is I seem to not have enough spoons available to take care of someone else’s emotional needs as well as my own. When I refer to spoons, I am referencing spoon theory, which is a way to measure how much available energy you have to devote to different tasks throughout the day. Understanding and planning where and when to use your spoons is a way to be considerate of your own capabilities.

Understanding my own needs is imperative for the ability to actually be supportive of another. If I am unable to take care of myself, how am I supposed to take care of someone else? In regard to this, I have worked to establish my own outlets for when I feel overwhelmed or stressed in order to still take on what may be my most important role. Find a couple friends, a relative, maybe even someone at work that is available to have a chat with here and there. Unload some of the burdens so they don’t overwhelm you. Finding a stable support system for myself has enabled me to give more to those that need me.

I cannot stress (pun intended) the importance of self-care enough. I have had times where I thought I could do it all, manage every aspect of my own life and someone else’s only to crash and burn. In the long run that doesn’t help anyone! Another point that I want to make about finding your own support system is that in becoming your supporter, that person is also supporting and contributing to the positive outcomes of who you are supporting, so for me, every person that supports me is also supporting Jing in her recovery process.

The larger our support networks grow, as does the opportunity for advocacy. I will continue to reach out to others because it is what those impacted by TBI need. I hope that all of those who read this will do the same.


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Please do not hesitate to reach out to the MindReset community.

The MindReset is a community of individuals who seek to inspire a social movement geared toward creating a more Supportive, Inclusive, Compassionate, and Kind society where anyone and everyone has the opportunity to thrive.

  • Facebook: https://www.facebook.com/theMindReset/
  • Instagram: @The_MindReset
  • Twitter: themindreset
  • #TheMindReset #TMR #SICK
  • e-mail: themindreset@gmail.com